So if you're reading this blog, by now you know after many other amazing, planned adventures in my life, I've embarked on a rather larger one I would never have imagined for myself. I've been present to courage and grace of others moving through similar journeys, but never thought I would find myself challenged in this way. Cancer just doesn't seem to care who it chooses. Neither does it respect the "low risk" labels we work so hard at maintaining and proudly attach to ourselves!
My intention for this blog is to share with my incredible cadre of friends and family what news there might be about my adventure. There certainly is a lot of new information I'm learning and will share some of that in bits and pieces. I want to make this not so wordy that it's painful to read, but informative and hopefully a bit of fun.
I've said earlier that if positive energy, love, prayers, optimism and support will make a difference in my healing, then count me already in the "cured" column. I continue to be overwhelmed by the expressions of love and support that show up on a daily basis. Those gestures truly touch my heart and I believe are why this process seems so perfect.
So...after a "Power Port" insertion on Monday, yesterday was my first spa (a.k.a. chemo) treatment-multiple drugs (more on those in another blog) over an 8 hour period (after labs and waiting for drugs to appear) and a pump at the end to wear home for 46 hours (out on Friday). The facility is brand new and beautiful (will take more pictures for next blog). Staff at MDA (MD Anderson) are chosen from many applicants who want to work there. Their careful screening is evident as to a person, they are all friendly, helpful and make you feel so cared for. Volunteers are sweet and gourmet lunch is brought around with organic, healthy ingredients (you get to choose from several entrees). Recliners are comfortable and each person has a private area with TV/VCR and hundreds of movies to choose from. I have been specially blessed as I have been gifted (THANK YOU Jennifer! XO) with a beautiful magic quilt that enfolds me in lots of loving energy during my treatments. And I secretly think that quilt protects me from any side effects and there have been none and today I'm feeling fine!
I meet with my physician, Dr. Bahadur, next week to assess how the treatment went and if we need to make any adjustments to the regimen. Should it remain the same, will plan on the second treatment in 2 weeks (and every two weeks thereafter for 12 treatments).
Only 11 to go...
So appreciate all the thoughts, prayers, energy coming my way!

I love this blog...If prayers and positive energy is healing, then you won't even need treatment #2.
ReplyDeleteLove
Lori
You go girl!!!! we've got your back, xoxoxoxo
ReplyDeleteMorning Lylaine and the community of love that surrounds you. THank you for making the blog so we can keep track of you and learn from you (wise woman that you are) without having to "hound" you for updates. At Frontier we "circle up" both in person (when we are together) and energetically from around the world when we are apart, to focus and share the energy. So..........i am circling up from Patagonia, Az
ReplyDeleteKathryn
So glad you started a blog - you have always been a great writer and I have no doubt that will carry forth here. I have found blogging to be so helpful in updating people, blowing off steam and providing some education to those are interested (after all there only about 10,000+ LVADers in the world :)
ReplyDeleteI'm here if you need me but based on that picture - you are looking pretty fabulous! I will look forward to seeing you sometime next week!
What a generous and thoughtful thing to do! You have made a wonderful start to a graceful journey through this cancer challenge. Love from us in Utah: Barbara, Michael, Amanda, Karma et al
ReplyDeleteI echo the thoughts of one of your followers. I am glad for this blog so I can follow your progress without calling and bothering you all the time. I will stay tuned.
ReplyDeleteDonna
Love your blog Lylaine! Sending hugs, love, & healing energy your way everyday. We are on the road heading back to Phoenix. Very excited to give you a hug in person.
ReplyDeleteXXXOOO
I know I told ya already, but absolutley love the name you came up with for the blog. It is just so fitting of your positive spirit and sense of humor, both of which are impossible not to notice from the moment one first meets ya :)
ReplyDeleteAprima Jeff